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Every year we are approached by several people from educational institutions doing their thesis on various subject matter that greatly involves parents of children with disabilities if we can share their survey with our families. Some of these studies even involve compensation or the ability to win something. Take a look at the surveys opportunities we've been offered below. 1st Opportunity:
 2nd Opportunity: Researchers from Wingate University would like to learn more about the school-based telehealth services you and your child received during the COVID-19 Pandemic. This survey should take you 20 minutes to complete. You do not have to take this survey, but it will help us with our research if you do. Please consider taking this survey if your child: 1. was receiving school based physical therapy services before the COVID-19 Pandemic; 2. received at least 10 hours of telehealth school based physical therapy services during the COVID-19 Pandemic; 3. received services that were live and not taped. If you have any questions about this survey, you can contact the primary researcher, Mary Swiggum, at (434) 221-0091. If you have any concerns about your privacy, your rights, or any issues related to your participation in this study, please contact Amie Naylor at rrb@wingate.edu. Continuation of this survey signals that you consent to participating in this research. Here is the link to the survey: https://wingate.co1.qualtrics.com/jfe/form/SV_0pIPkmR3M2YLV2d The survey will remain open until March 10, 2021. Thank you for your participation. 3rd Opportunity:
Survey link: https://redcap.vanderbilt.edu/surveys/?s=WXPHC39FMJ Survey information We have recently received Institutional Review Board (IRB) approval to conduct a survey study. As a result, we are currently seeking primary caregivers of individuals who have complex communication needs. The goal is to gather primary caregivers' perspectives on the training received (if any), to support and enhance their child's communication skills. By gathering information and variables that lead to positive and negative experience we hope to make recommendations and to outline key elements to minimize experiences that may be contributing to high levels of communication system abandonment and decrease the impact these systems may have on the family. The survey will take approximately 20-30 minutes to complete. All responses are confidential. Only the principal investigators will have access to the completed surveys. If you are willing to participate, click the link at the end of this email to access the consent form and please complete the survey entirely. For your convenience, we have set the survey so that you can stop and come back to it at any point (by clicking "save and return later"). REDCap will provide you with a unique code that you will need to enter in order to return to your survey, so please be sure to save that unique code. There is no compensation for participation in this survey; but we appreciate your time and willingness to help us learn from you. For your information, below we have provided some additional details on the study
Thank you for your willingness to consider participating in this project. Survey link: https://redcap.vanderbilt.edu/surveys/?s=WXPHC39FMJ
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In-person events and activities are still limited as we continue practicing safe social distancing and sheltering in place. With that in mind, virtual social activities are a good option for people we support to remain socially engaged with others!  Hosted by Achilles International- Arkansas Achilles International- Arkansas is a local running, walking, rolling group for people with disabilities. They typically host weekly workouts but have shifted to having virtual hangouts instead. This is a great meet up for folks interested in health and fitness but is also open to everybody. This event is for adults and children. Day: Every Saturday Time: 9AM Central Time Zoom Link:https://us02web.zoom.us/j/86832418538 Zoom Meeting ID: 868 3241 8538  Hosted by Shoot for the Stars NWA
Shoot for the Stars is a nonprofit in NWA that provides dance classes to children of all ages with disabilities. Day: Beginning Febuary 12th..every Friday until April 16th Time: 4-4:45PM Central Time Registration Link: https://www.shoot4thestars.org/dance-classes Registration is free. All participants will receive a t-shirt. This event is for children. I Want to Be in Charge!
Tuesday, November 24th from 1-2:15 PM CT via Zoom. This training is for people with disabilities to understanding speaking up for yourself and knowing how to make informed choices from real life situations, and for providers to support them the best way for each person. You can register for this event by registering here: https://uark.qualtrics.com/jfe/form/SV_01I8Ij9rGzPNr5b or by emailing alichtle@uark.edu. Please include any accommodations needed in the email. The Zoom link and password for the event will be sent out no later than the morning of the event to the email listed in the registration. What’s the Deal with Ableism? Tuesday, December 8th from 1-2:15 PM CT via Zoom. This training is mainly for people with disabilities, advocates, and family members to learn about the importance of advocacy. It will define ableism, give examples of ableism and show how ableism contributes to the stereotypes/labels put on people with disabilities which does not keep people with disabilities safe. You can register for this event by registering here: https://uark.qualtrics.com/jfe/form/SV_4T0hnPxvQ78MxjT or by emailing alichtle@uark.edu. Please include any accommodations needed in the email. The Zoom link and password for the event will be sent out no later than the morning of the event to the email listed in the registration. Since our community is beginning to slowly open back up, Arkansas Support Network (CPRC) decided to make a whole new tab on our website containing resources for all things surrounding the issues our community is facing with COVID-19 and it's after effects. These include food resources, COVID-19 hotlines and evaluation sites, and also how to apply for benefits and economic assistance. This is available in English and Spanish. Take a Look by clicking the image below.  Walmart and Quest have opened up testing to ANYONE with COVID-19 symptoms, starting immediately. We need help getting the word out to the community, so potentially infected residents can have an opportunity to be tested. The testing site has been moved from the David Glass Technology Center parking lot to the west parking lot of the Walmart Home Office, located at the intersection of 8th and Walton. The process remains the same, with people using the Quest app to schedule an appointment. Who: Anyone who is exhibiting symptoms of COVID-19 and all healthcare providers and first responders. For more information on testing eligibility please see CDC guidelines:https://www.cdc.gov/coronavirus/2019-ncov/downloads/priority-testing-patients.pdf. When: • The drive-thru will be open daily from 9 a.m. to 4 p.m., weather permitting. • Please arrive no more than 10 minutes before your appointment time. Where: • You must first qualify for COVID-19 screening and schedule an appointment at:www.MyQuestCOVIDTest.com • Walmart Home Office parking lot: 702 SW 8th Street, Bentonville, AR 72716 • PLEASE NOTE: Testing is not available in any Walmart store or in any Quest Diagnostics Patient Service Center. What to bring/things to note: • The testing site will require an appointment through Quest’s MyQuestTM online portal and app. You will receive an appointment confirmation that you will need to have on hand when you arrive on-site. • In addition, please make sure to bring your insurance card and valid photo ID for proof of identity. •Those being tested will need to stay in their cars for verification of eligibility criteria, ID check and sample self-collection. For the safety of all those on-site, the test site is not able to service those who walk up.   Crystal Bridges has several fun (and free!) family and access programs coming up. This is for families in Northwest Arkansas.
Upcoming programs at Crystal Bridges Museum of American Art are listed below: Ongoing: Drop-in Artmaking Saturdays and Sundays, 1-4pm Drop in Estes Studio every weekend between 1 and 4 p.m. for creative artmaking for all ages inspired by an artwork in the museum! Free, no registration required. Multisensory Saturday January 25, 11-2pm Explore art with all of your senses on this multisensory self-guided tour of the museum’s galleries facilitated by our access and inclusion department. Open for all! Free, no registration required. Family Sunday » I Heart Art February 9, 12-5pm Mark your calendars for our eighth annual I ♥ Art Family Sunday! Bring your loved ones to Crystal Bridges to enjoy performances, artmaking, valentines, creative play, gallery activities, and more for a Valentine’s-themed day. Don’t forget to pick up a paper heart in the lobby and show your love to your favorite artwork with #HeartsforArt! Free, no registration required. Family Access Night March 6, 6-8pm Family Access Night is a fun night out for families with children of all abilities to visit the museum. Youth with disabilities and their families participate in engaging activities including gallery tours, studio art activities, and performances by local entertainers. The event is free, and pre-registration is encouraged. Questions? Call 479.657.2415 or email access@crystalbridges.org. Free, register online or with Guest Services at 479.657.2335. One District One Book March 8, 1-4pm Join us for a wrap-up celebration of the One District One Book reading program! The whole family is invited to enjoy an afternoon of fun with games, exploration, and art projects featuring our friends from Bentonville Public Schools, Bentonville Public Library, and other community collaborators. Free, no registration required. Spring Break Specials March 21-March 29, 1-4pm Spend your Spring Break afternoons at the museum! Welcome spring with fun and free artmaking, activities, and performances all week. Free, no registration required. ArtShare » Friday Night Fun April 3, 6-8pm ArtShare: Friday Night Fun is a fun event for youth with autism and their families where families explore the galleries, participate in hands-on activities, and create art together. The event is free, and pre-registration is encouraged. Questions? Call 479.657.2415 or email access@crystalbridges.org. Free, register online or with Guest Services at 479.657.2335. Slow Art Day April 4, 11-6pm Crystal Bridges is joining museums around the world in celebration of Slow Art Day! This annual event, dedicated to slowing down, reflecting, and finding the joy in art, will feature special in-gallery activities designed to keep you focused on the art for 10 to 15 minutesㅡor longer! Come ready to spend quality time in the galleries with artworks from our permanent collection and celebrate the joy of looking together. Great for all ages! Free, no registration required All internal spaces at the museum are wheelchair accessible. Sign language interpretation available upon request with advanced notice based on availability. Please contact here to schedule. Find more information about the museum’s accessibility here. Contact information: Kim Crowell Senior Museum Educator and Accessibility Coordinator 479.657.2415 (direct) CrystalBridges.org  It's never to early to start planning for summer plans when you have a child with special needs. Below is a comprehensive list of summer camps, activities, and respite that will be available in the NW Arkansas and surrounding areas for this coming summer of 2020. SUMMER CAMPS Arkansas Support Network Kids Club Located in: Springdale, AR Ages: 14-15, 16+ Camp Type: Day Camp Description and Camps Offered: Kids Club: Kids Club 2020 will have a work-based focus designed to encourage 14-15-year-olds to begin thinking about work opportunities and vocational skills as they approach the transition into adulthood. Campers will have the chance to participate in field trips throughout the area. During the summer of 2019, 2 three-week sessions were offered, the summer 2020 schedule will be finalized in February. To register, or for more information, contact ASN at the number listed below. Transition Program: The Transition Program provides work-based experience for young people 16+ to help focus and hone their skills and interests for future work opportunities. All campers will need a referral to be submitted from Arkansas Rehabilitation Services by March 2020. Contact: (479) 927-4100; https://supports.org/ Camp Acacia Located in: Gentry, AR Ages: 6-12, 13-22 Camp Type: Overnight Description and Camps Offered: Camp Acacia currently offers one-week sessions of summer camp for individuals with diverse abilities based on camper age (6-12, 13-22) and the amount of support needed, whether that is a 1:1, 2:1, or 3:1 camper to counselor ratio. Camp activities focus on social skills education and community-based recreation activities. Each of the 6 week-long camps are dedicated to a specific age range and support need. Contact: 479-466-2006; https://campacacia.org/ Camp Aldersgate, Inc. Located in: Little Rock, AR Ages: 6-18 Camp Type: Overnight and Day options available Description and Camps Offered: Camp Aldersgate’s Summer Camps serve children with medical, physical and developmental needs. Camp offers traditional summer camp activities such as campfires and singing, canoeing, fishing, arts and crafts, swimming, and nature hikes as well as adaptable adventures to serve children of all abilities, including an accessible ropes course, carousel, archery range, and a professionally-led SCUBA experience. Summer Medical Camps: Five summer sessions are dedicated to children with specific medical conditions, including muscular dystrophy, spina bifida, diabetes, heart conditions, arthritis, kidney disorders, cancer, bleeding disorders, and asthma. Kota Camps: Two summer sessions for campers with various disabilities and non-disabled siblings and friends. Pediatrics Plus Summer Day Camp: 6-week day camp for children with Autism Spectrum Disorder hosted in partnership with Pediatrics PLUS of Arkansas. Program is currently FREE to children that qualify for therapy services through the EIDT program. Contact: 501-225-1444; https://www.campaldersgate.net/ *Scholarships Available Camp Barnabas Located in: Purdy, MO Ages: 7+ Camp Type: Overnight Description and Camps Offered: Camp Barnabas is a Christian ministry that provides camping experiences to individuals with special needs and chronic illnesses, along with their siblings. Each weeklong camp is focused on a specific age group and set of diagnoses so that each camper is in a cabin with others similar to themselves. All campers are matched with a 1:1 volunteer to support them to engage fully in their camp experience. Contact: 417-522-6011; https://www.campbarnabas.org/ Camp Connect Located in: Ages: Camp Type: Day Camp Dates: Description and Camps Offered: Targeted Day Camp for children with autism. Details to be confirmed in late December Contact: 479-575-3215; projconn@uark.edu Champions Special Ministries Located in: Springdale, AR (Cross Church Springdale) Ages: 6+ Camp Type: Day Camp Dates: June 15-19 Description and Camps Offered: Champions Special Ministries is a Christian ministry that seeks to provide fun, engaging, and inclusive summer programming for individuals with disabilities. Their full week day camp pairs all campers with a 1:1 volunteer to support them as they engage in sports, crafts, themed parties, Bible study and more. Registration begins January 15th. Contact: 479-466-1860; https://www.championsspecialministries.org/ *Scholarships Available Playability, LLC Located in: Different NWA locations each week Ages: TBD Camp Type: Weekly social skills groups Dates: TBD Description: Based on interest, Playability Counseling offers 8-week social skills groups of 3-6 participants, matched by age and ability level, that focus on different topics each week. Topics can include conversations, personal space, boundaries, and tone of voice. Groups meet in various locations to children can learn and practice in places they would normally be (bowling alley, park, etc.). Contact: christa@playabilitycounseling.com PlayStrong Pediatric Therapy Located in: Rogers, AR Camp Type: Day Camp Dates: TBD Description and Camps Offered: Depending on interest each summer, PlayStrong Pediatric Therapy may offer day camp programming. Follow their website and Facebook page for details which are expected to be finalized in April 2020. Contact: 479-246-0101; https://www.facebook.com/playstrongtherapy/; http://www.playstrongtherapy.com/ Funding Arkansas Autism Foundation – Special Respite Grant Description: Up to $200 available to put towards any type of respite including private babysitters, summer camps, or other activities that would give respite to the family. Contact: For more information and to apply, go to: https://arkansasautismfoundation.org/outreach/grants/ Year-Round Respite Opportunities 99 Balloons – rEcess Description: rEcess is a respite project that provides fun evening programming for children with disabilities and their siblings so that parents can enjoy a few hours of respite. All children with special needs are paired with a 1:1 adult volunteer while their siblings participate in their own specially designed programming. Locations and Contact Info: Bentonville – New Heights Church: stephanie.marpe@gmail.com Fayetteville – 99 Balloons: rebecca@99balloons.org Fayetteville – Christ Community Church: seth@99balloons.org Fayetteville – (rEcreo) Grace Church of NWA: bkleonard8@gmail.com Harrison – First United Methodist: chris.deringfumc@gmail.com Rogers – Fellowship Bible Church NWA: recess.fellowship@gmail.com Website: https://99balloons.org/ Camp Aldersgate, Inc – Weekend Camps Description: Camp Aldersgate’s Weekend Camps provide developmentally appropriate opportunities for our campers that promote cognitive, physical, social and emotional growth in a fun, engaging, camp setting. Activity planning for each weekend includes a mix of physical activities, art, outdoor activities and structured and free-play. Weekend Camps are open for each camper to attend a maximum of six times in a school year. Location: Little Rock, AR Eligibility: Children 6-18 who receive special education services in the school setting, require use of assistive devices and adaptations to complete Activities of Daily Living, and are eligible for one of the summer camps at Aldersgate. Website: https://www.campaldersgate.net/weekend-camps/ Camp Acacia – Acacia Play and Acacia Explore Description: Acacia Play is a full 12 hours of fun at Camp Acacia once a month, in non-camp months. Based on a theme, Acacia Play allows campers the chance to have an awesome time with their friends and gives parents a full weekend day of respite. Acacia Explore offers two monthly community-based recreation events for campers and their friends and family members. Location: Gentry, AR and wider Northwest Arkansas Area Website: https://campacacia.org/acacia-explore; https://campacacia.org/acacia-play Accessible Family Activities Autism-Friendly Jump Sessions at DEFY Rogers Description: DEFY Rogers (Formerly High Rise Extreme Airsports) hosts Autism-Friendly jump sessions throughout the year. Sessions are not regularly scheduled, but are posted on their Facebook and Instagram pages as they are scheduled. For more information: https://www.facebook.com/defyrogers/?rf=270185523005733 National Parks Access Pass Description: U.S. Citizens or Permanent Residents with permanent disabilities are eligible the America the Beautiful Access Pass which provides free admittance to more than 2,000 recreation sites across the country. Applicants must provide documentation of proof of residency and documentation of permanent disability. Passes can be obtained by applying in person at certain federal recreation sites, by mail, or online. The access pass is free, but a $10 processing fee is required. For more information: https://www.nps.gov/planyourvisit/passes.htm#CP_JUMP_5088581; https://store.usgs.gov/access-pass Sensory Friendly Movie at AMC Fiesta Square 12 Description: Lights turned up, sound turned down, these sensory-friendly showings welcome singing, shouting, and dancing in the aisles. The AMC Fiesta Square offers showings that are family-friendly, and showings for more mature audiences on alternating weeks. For more information: https://www.amctheatres.com/programs/sensory-friendly-films *If you know of a camp, funding source, respite opportunity, or accessibly family activity not listed here, please contact cprc@supports.org so your information can be shared!  "Vote as if your life depends on it, because it does..." - Justin Dart
You WONT want to miss this! October 3rd, 2018 at the Comfort Inn and Suites, Downtown Little Rock at the Clinton Library 707, Interstate 30 For room reservation contact 501-687-7700 8:30am to 3pm Summary of topics for registration: Health Care: Possible discussion items include: access to healthcare services; implementation of PASSE system in AR Employment: Possible discussion items include: increase support employment opportunities for individuals with disabilities; Employment First opportunities. Education: Possible discussion items include: moving away from segregated settings; increasing daycare and after school programs for students with disabilities; the use of restraint and seclusion in schools. Transportation: Possible discussion items include: lack of accessible transportation throughout the state. Housing: Possible discussion items include: increase accessible affordable housing for individuals with disabilities to live independently; universal design for all new multi-dwelling housing; Arkansas Housing Trust Fund. Arkansas Disability Policy Consortium PO BOX 55346 Little Rock, AR 72215 For more information, email: adpc2003@aol.com or call ADPC Chair Judy Brooks (870) 733‐4845 or Rodney Farley (501) 682‐1461  "Vote as if your life depends on it, because it does..." - Justin Dart
You WONT want to miss this! October 3rd, 2018 at the Comfort Inn and Suites, Downtown Little Rock at the Clinton Library 707, Interstate 30 For room reservation contact 501-687-7700 8:30am to 3pm Summary of topics for registration: Health Care: Possible discussion items include: access to healthcare services; implementation of PASSE system in Arkansas Employment: Possible discussion items include: increase support employment opportunities for individuals with disabilities; Employment First opportunities. Education: Possible discussion items include: moving away from segregated settings; increasing daycare and after school programs for students with disabilities; the use of restraint and seclusion in schools. Transportation: Possible discussion items include: lack of accessible transportation throughout the state. Housing: Possible discussion items include: increase accessible affordable housing for individuals with disabilities to live independently; universal design for all new multi-dwelling housing; Arkansas Housing Trust Fund. Arkansas Disability Policy Consortium PO BOX 55346 Little Rock, AR 72215 For more information, email: adpc2003@aol.com or call ADPC Chair Judy Brooks (870) 733‐4845 or Rodney Farley (501) 682‐1461  Can you believe we're only 3.5 weeks away from being back to school for most of our kids? We are compiling a list of different back to school activities and help with supplies coming up in the NW Arkansas area. If you have one to add, please email it to us at sbell@supports.org. Thank you! Back to School Resource Fair - Saturday, July 21st from 11am to 1pm
Altrusa International of Washington County Inc is hosting the Back to School Resource Fair in Prarie Grove on July 21st. The event benefits children and parents in Washington County and will take place from 11am to 1pm at Prarie Grove Elementary. On that day, children will be able to get new backpacks, school supplies, books, and snack packs. Students will even be able to get a haircut at the event. The items and haircuts are available for free while supplies last. A free lunch and a vendor fair will be provided for the parents. There will be an obstacle course with prizes, door prizes, books, and more. Prarie Grove Elementary School 801 Viney Grove Rd, Prarie Grove, AR 72753 Back to School Bash - Round Mountain Community Church - August 11th from 10am to 12pm http://www.rmccofnwa.com/2018_back_to_school_bash Back 2 School Bonanza - Thursday, August 2nd, 2018 from 4:30pm to 7pm Tennis shoes, hair cuts, backpacks, socks and underthings, vision and dental screenings, kindergarten school physical. For children in kindergarten through 12th grade. All are welcome, children must be present. For information or to volunteer call 479 267 3180 or 479 530 6412. Farmington United Methodist Church 355 Southwinds Dr, Farmington, AR |
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